Help and Support header

    Help and support

    On The Epilepsy Space we’ve mentioned lots of different sources information, help and support.

    Here’s a summary of the help and support available from Epilepsy Action.

    Epilepsy Action Helpline

    Grace, one of the helpline team

    For advice and information about epilepsy the Epilepsy Action Helpline is here to help.

    Online forum

    Man using a laptop

    A new online chat group, specifically for young people, is being developed for The Epilepsy Space.  If you want to know when it’s ready, send us an e-mail and you’ll be the first to know. (We’ll only use your email address to contact you about the online chat group).

    Forum4e is Epilepsy Action’s online community for people with epilepsy and carers of people with epilepsy.  Visit forum.epilepsy.org.uk

    Online learning

    Epilepsy Action has a range of online courses for different people all about epilepsy. Most courses are free.
    Computer keyboard
    For people with epilepsy

    For family and friends

    All the courses can be accessed on Epilepsy Action’s learning site

    Woman looking at internet on her phone

    Advice and information on our website

    There’s lots of advice and information about epilepsy on the Epilepsy Action website

    Podcast

    Epilepsycast is the podcast about all things epilepsy from Epilepsy Action. Each episode talks to a guest about their experience of epilepsy. Search for epilepsycast in your usual podcast feed, or listen at epilepsy.org.uk/podcast.

    Local groups

    People talking in a coffee shop

    Meeting others who have had similar experiences can be a great source of support.

    Epilepsy Action has local branches and runs more than 100 coffee and chat groups across England, Wales and Northern Ireland. The groups offer a relaxed way to meet new people, share experiences and learn more about epilepsy.

    Find out what’s in your area

    Due to the coronavirus pandemic, coffee and chat groups aren’t happening at the moment. Virtual groups are a different way of staying connected. They are open to people over 18 years old. More info about virtual groups.

    Membership

    Epilepsy Action membership pack

    Join Epilepsy Action and be part of our community of support.  Membership benefits include:

    There is an annual membership fee, and the option to set up a direct debit. To join contact the team:

    Epilepsy awareness training

    Awareness training session

    Epilepsy Action provides epilepsy awareness training. It’s available to any group that wants to learn more about epilepsy. We run sessions for employers and organisations such as schools, colleges and universities. To book a session get in touch with Epilepsy Action.

    We also have a range of online courses for schools.

    Volunteering

    Fundraising volunteers at an event

    If you are interested in supporting other people with epilepsy, volunteering can make a big difference.

    There are lots of ways to volunteer with Epilepsy Action. From helping at events to coordinating a local group or delivering training. Our website has more information about the ways you can volunteer with us

    Updated 12 May 2020
    Review 12 May 2023
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